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Showing posts from May 21, 2017

Please Take This SURVEY about Children's Services in Indiana

To: DDRS Stakeholders From: Kylee Hope, Director, Division of Disability and Rehabilitative Services (DDRS) Date: May 25, 2017 Indiana Children’s Services Survey The Family Indiana Family and Social Services Administration has contracted with the Lewin Group to explore Medicaid Home and Community-Based Services (HCBS), to assess areas of service fragmentation and to identify opportunities for the system of supports for children in Indiana to become more person-centered.  As part of this initiative, Lewin has developed the Indiana Children’s Services Survey and is inviting Division of Disability and Rehabilitative Services’ stakeholders to participate in the survey which includes families and guardians of children, case managers, providers of children’s services and advocates. For purposes of this survey, “child” refers to any individual age’s birth to 22, who has, or is at increased risk for, chronic physical, developmental, behavioral or emotional conditions or requires

It is Complicated. A Child’s View Can Guide Us.

By Rylin Rodgers, Riley Child Development Center Too often policy discussions and budget debates are framed in terms of winners and losers at the program, department, or budget line level. Families raising children who have health care needs and disabilities are impacted every day by public policy, systems, and services related to health care, education, housing, nutrition and transportation. For our families this is not wonky abstraction, it is real life, woven into every part of our days. As families, we know that columns and silos are not reality. A child growing up with a complex health care need is the real winner – and frankly too often, the loser. The  budget  debate, combined with the debate about America’s  health care  system, may provide the best opportunity in recent memory to see the world of systems through the experience of families. Medicaid cuts  could end access to home and community based waivers that are so critical to adequate coverage, providing both access

Action Alert: Protect Medicaid

from the The CCD Grassroots Team: We can’t emphasize enough how important it is for the disability community to take action NOW to strongly oppose the AHCA, particularly its devastating cuts and caps to Medicaid . 1.        CBO score for the AHCA is out :  Late yesterday, the Congressional Budget Office put out a  CBO score for the AHCA .  The highlights include 23 million people losing insurance (including 14 million from Medicaid) and an  $834 billion cut to Medicaid .  The Medicaid per capita caps have NOTHING to do with repeal of the ACA; this is simply a “pay for” for the rest of the bill.  This is an important talking point we should continue to emphasize. 2.        Recess is a critical time to make your voices heard in your state .  Legislators will be home from May 29 to June 2 nd .  You need to make sure your legislators know that the AHCA would decimate Medicaid and literally harm millions of seniors and people with disabilities.  As we discussed yesterday,  there

Legislative Update and Interim Study Committees

from Indiana Assn of United Ways: View the end of session Legislative Update webinar  Indiana United Ways,  Indiana Coalition for Human Services  and the  Children's Coalition of Indiana  partner to provide legislative updates to related to nonprofit and human services issues.  The webinar will provide a recap of the 2017 legislative session and updates on key human services legislation.   View the recording  and  contact us  if you have any additional questions.  You may also view Indiana United Ways'  Legislative Summary . Interim study committee topics assigned During the 2017 legislative session a number of study topics were recommended through legislation and the Legislative Council is who decides which topics should be assigned. The resolution assigning the study committee topics was released this week. Below is a breakdown of the assignments with highlighted topics that may be of importance to our readers. Interim Study Committee on Agriculture

Legislative Update

from National Family Voices: President's Budget Proposal On May 23, the president submitted his FY 2018 budget proposal to Congress. As of this writing ( Monday ), the budget has not been official released, but the media have reported on its expected contents, based in part on a leaked document. According to reports, the president proposes to severely cut safety-net programs such as welfare (Temporary Assistance to Needy Families), food stamps (Supplemental Nutrition Assistance Program), the Earned Income Tax Credit (for working families with children), and possibly SSDI (Social Security Disability Insurance) and SSI (Supplemental Security Income). In addition, the budget reportedly proposes the same Medicaid restructuring and cuts (per capita caps and block grants) that are included in the House-passed health care bill, and would further cut federal spending for the program. See  Trump to Pitch Deep Cuts to Anti-Poverty Programs, Medicaid  (Bloomberg Politics, 5/22/17);  Tr

Share Your Voice to Protect Medicaid: Heather's Story

We're families, too. We're watching the American Health Care Act and the President's proposed budget closely because it affects us as well. We're fighting for our own families, and yours. Please help us by sharing your story with your Senators and Representative. You can call them at the  US  Capitol Switchboard  (202) 224-3121.   If you'd like a script for certain topics so you know what to say, you can use, which also has a FREE app for your phone. You can also use social media: find their FB page or Twitter account. Your VOICE can make a difference to help protect healthcare for children with special health care needs and disabilities. Help us reach MORE people by sharing this with friends and family who care about your child. We can not use grant funding for these activities. Our specialists do this on their own time because the issues matter to them, too. If you'd like to make a donation to support our work, you can do so here: