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Showing posts from July 12, 2020

Family Presence Policies for Pediatric Inpatient Settings During the COVID-19 Pandemic

From The American Academy of Pediatrics "The coronavirus disease 2019 (COVID-19) pandemic has impacted the United States health care system in unprecedented ways. The American Academy of Pediatrics (AAP) recognizes the importance of providing the best medical care as well as providing compassionate patient- and family- centered care for children who are in the hospital and their families/caregivers while reducing infection risk and keeping clinicians/staff safe. Family presence policies are critical components of family-centered care for all children and are particularly important for children with special health care needs, including those with disabilities, medical complexity, and serious illness. Family presence policies are also important for youth and young adults with disabilities over the age of 18 and require reasonable accommodations per the Americans with Disabilities Act. Below are a few frequently asked questions on family presence and suggestions from the AAP." h

Grant Opportunity for Northeast Indiana K-12 Educators

Northeast Indiana K-12 educators: This grant opportunity is to support your classroom solutions for your special education students during COVID-19. Find more information here: covid-19/ The AWS Foundation serves the following counties: Adams, Allen, DeKalb, Grant, Huntington, Kosciusko, Noble, Steuben, Wabash, Wells, and Whitley.

DDRS Update: Updated documentation standards – Day habilitation & behavior support services

The Bureau of Developmental Disabilities Services recently made changes to several waiver service definitions as part of the bureau’s waiver renewal process. The complete, approved waiver documents can be found  by clicking here. As part of these changes, BDDS updated facility habilitation and community habilitation services, and combined them to one service, day habilitation. Additionally, the language in the service definition for behavior support services was updated and clarified. As a result, new documentation standards are being issued for both day habilitation and behavior support services.   The changes for documentation standards for behavior support services are effective July 16, 2020. The change to day habilitation, and changes associated with the documentation standards are effective August 1, 2020.   The documentation standards for these services will soon be updated and available in the in the provider module, and are currently available  by clicking here.

Survey on Telehealth

Child Neurology Foundation is collecting the experiences of patients and caregivers with telehealth during the pandemic, through a brief and anonymous survey. They will use the data to provide resources for both caregivers and providers as well as continue to advocate accessible and high quality medical care.  If you have any questions about the survey or CNF in general, please email  programs@ .    The survey will close on July 17. r/telehealthcovid  

Home and Community Based Settings Waiver Renewal Fact Sheet

"Every five years states are required to renew their waivers with the Centers for Medicare and Medicaid Services (CMS).  This year the waivers administered by the Bureau of Developmental Disabilities Services were due to be renewed.  This brought an opportunity for the bureau to make some changes based upon feedback received from individuals and families over the past several years.  The renewal is not in place of the waiver redesign efforts which is still underway. The effective date of the Bureau of Developmental Disabilities Services (BDDS) Family Supports (FS) and Community Integration and Habilitation (CIH) waiver renewals is July 16, 2020. Service descriptions to all of the waiver services were edited to bring greater understanding and clarity.  The following information provides a brief overview of the most significant changes made through the renewal.  To read all of the changes made you may visit For questions about your waiver, how

Post-School Outcomes Survey

The Center on Community Living and Careers is working with the Indiana Department of Education to distribute a  Post-School Outcomes Survey  to families and those students with disabilities around the state who left high school in the 2018-2019 school year. Further information can be found below. Survey Promo Content Family Orgs-newsletters and Social Media by Family Voices Indiana on Scribd

DDRS state funded services and program changes

The COVID-19 pandemic has brought unique opportunities and challenges for the individuals and families who utilize our services, their service providers and our community. We worked together to find creative solutions to meet individual’s needs and support their vision of a good life while simultaneously making difficult decisions that were necessary to keep everyone supported, healthy and safe. The public health emergency has also brought unique challenges to the state of Indiana. On May 21, 2020, Indiana’s State Budget Agency announced that each state agency was asked to immediately implement a 15% budget reduction. With this announcement, the Family and Social Services Administration has strived to meet the challenges of our state on many fronts and to continue to deliver critical services. In order to accomplish this, the Division of Disability and Rehabilitative Services had to make difficult decisions related to required budget reductions. DDRS administers services across the lif

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Employees Who Are Parents of Children with Disabilities

Dear Parent,   St. John’s University is committed to help improve the lives of those who care for a person with special needs. We strive to help advance the support of parents in and out of their workplace.    We are currently collecting data on the work engagement of employees who are parents of children with special needs. Our goal is for this data to serve as a first step in a larger discussion about human resource practices for the support of parents in the workplace. We are asking you to spend fifteen minutes to share your views by completing a short and anonymous survey relevant to your employment prior to COVID-19.     Please know that your participation will help parents and employers support other parents of children with special needs. The survey is 100% anonymous and no one has access to the data but St. John’s.  No names or identifying info is collected or ever shared.      To participate please click on one of the link below:   http://tobin.az1.qualtrics. com/jfe/form/SV_

Don't Forget to Register for the 2020 Heart to Heart Conference

The 2020 Heart to Heart Conference is virtual! Enjoy the same family-focused content and respected presenters you have come to expect from past conferences from the comfort of your home. Make sure to register to secure your spot! The live keynote presentation and 12 breakout sessions will take place Thursday, Oct. 1, 9 a.m. to 3:15 p.m. Registration is free for families and professionals! Stay tuned to FVI’s Facebook and Twitter for more info about session breakouts and presenters, or checkout the Heart to Heart conference website: . Questions? Feel free to contact us at