Formerly Family Voices IN/About Special Kids. We provide answers and resources to families and professionals who are involved in the upbringing of children with complex medical conditions, mental health diagnoses and physical/intellectual disabilities.
April is National Financial Literacy Month ! National Disability Institute (NDI) recognizes Financial Literacy Month as an opportunity to encourage people with disabilities to set and achieve financial goals, save money and improve their financial futures. One in four Americans with disabilities lives in poverty. Let’s spend April, and every month, working to improve the financial capability of people with disabilities and remove barriers that hinder access to employment, education, financial services and full participation in their communities. Explore NDI's Free Financial Tools By equipping people with disabilities with the skills & knowledge to take action…we can achieve financial wellness! NDI's Financial Wellness Toolkit is full of resources, including Financial Education Handouts, Quick Reference Guides and a 10-Minute Training Series. These tools can help individuals, families, financial institutions and community partners improve the financial future of people wi
In partnership with the Indiana Coalition to End Sexual Assault and Human Trafficking, the Bureau of Quality Improvement Services is offering a web-based learning opportunity about sexual violence and disability. According to the Bureau of Justice Statistics, National Crime Victimization Survey, Special Tabulation, 2011-2015 , people with intellectual disabilities — women and men — are the victims of sexual assaults at rates more than seven times those for people without disabilities. Webinar participants will learn more about: Sexual assault and violence Confidentiality and reporting How to support someone who has disclosed information to you Resources available to survivors. Providers, direct support professionals, families and self-advocates are welcome to attend. The learning opportunity will take place on Thursday , June 3, 2021, from 10 - 11:30 a.m. EDT. There is no charge to attend. Please register here: https://forms.gle/ YMS8aZEAMweLWJvMA A link to the live webinar will b
From The New York Times. Original can be found here : As more parents get vaccinated ahead of their children, some families are finding themselves with questions that seem to have no clear answers: Is it finally OK to have indoor play dates? Can we take summer vacations , or fly on airplanes? What if my kids are high risk? If this new and perplexing reality has added to your stress, you’re not alone. “It has really produced a ton of new anxiety, this process of reopening, re-engaging with social interactions after a year trying to avoid them,” said Malia Jones, a community health scientist at the University of Wisconsin-Madison. The vaccines seem to have provided a promising path out of the pandemic, she said, “but also, oh my God, we have to renegotiate every single one of these situations.” The good news is that there are ways to think through some of the most common questions families may have based on federal guidance and what we know about Covid-19 risks, experts said. But keep
On March 31, President Biden unveiled the American Jobs Plan , a broad proposal to improve the nation’s infrastructure and promote economic recovery. Part of the plan is to expand Medicaid coverage of home-based care options. The full fact sheet on the plan can be found here , but the snippet on this topic is below. "Even before COVID-19, our country was in the midst of a caregiving crisis. In addition to caring for children, families feel the financial burden of caring for aging relatives and family members with disabilities, and there is a financial strain for people with disabilities living independently to ensure that they are getting care in their homes. At the same time, hundreds of thousands of people who need better care are unable to access it, even though they qualify under Medicaid. In fact, it can take years for these individuals to get the services they badly need. Aging relatives and people with disabilities deserve better. They deserve high-quality services and s
From CNF Seizures can be life-threatening, but knowing what to do and acting quickly can help prevent a seizure emergency. In the second part of our new Healthy Epilepsy Management Series, we dive into two things you need to know about before a seizure occurs: Seizure Action Plans and seizure rescue medications. A Seizure Action Plan contains tailored guidelines on how to respond during a seizure, based on your child’s medical history. It's important because it can reduce the time to action during a seizure which, in turn, reduce risks associated with seizures. Seizure rescue medications or treatments are meant to be used in specific situations. If used properly, they may stop seizures quickly and effectively, although they should never take the place of daily seizure medications. Pediatric epileptologist Dr. Jeffrey Buchhalter discusses what a seizure plan should include, when and how to administer seizure rescue medication, and what to do afterwards. Watch that video below o