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Showing posts from April 25, 2021

FUSE's First Ever Virtual Inspiring Abilities Expo

This two day virtual expo will be on May 14 &15. The expo offers families and professionals a great opportunity to learn up-to-date information and network with organizations and service providers who meet the unique needs of individuals with disabilities. Attendees will have the opportunity to explore 4 sessions with 12 unique topics over two days. All sessions will be recorded and available at any time, for up to six months to all attendees. Visit the Sponsor and Exhibitor Centers to meet and talk with therapy and service providers, nonprofit organizations, advocacy groups, recreation programs and other agencies serving adults and children with disabilities. The first 100 to register will receive an Inspiring Abilities Expo Swag Bag before May 14! FREE admission! Click here to register

IPMG has been approved for the Children's Mental Health Initiative

The Children’s Mental Health Initiative (CMHI) is an initiative to provide services to children who do not have formal involvement with the child welfare system, but due to their mental and behavioral health needs, require services to maintain safely in their home and community. When community services are not able to maintain the child at home, the CMHI may fund higher level out of home services for stabilization purposes only. The CMHI provides services to children who are not eligible for Medicaid or have private insurance that does not provide coverage for mental and behavioral health services. The CMHI can also provide services for youth with exclusionary diagnoses that prevents them from receiving Medicaid funded wraparound services if they meet all other qualifying criteria for Wraparound Services. Services Available: • Assessment for eligibility • Wraparound Facilitation • Habilitation • Respite • Family Support and Training for the Unpaid Caregiver • Behavioral health services

Indiana Expands Postpartum Medicaid

  From Covering Kids & Families of Indiana Indiana has elected to extend postpartum Medicaid coverage to 12 months, acting quickly to take advantage of a new federal policy created through the American Rescue Plan Act. Prior to this action Medicaid coverage would generally continue for just 60 days after childbirth, potentially creating a coverage gap during a high risk period for new mothers. Venessa Summers, an Indiana State Representative also on staff with the Indiana Minority Health Coalition, had championed the extension legislatively. “Eighty-seven percent of pregnancy-associated deaths occurred postpartum, with a significant portion of those coming six weeks after giving birth,” commented Representative Summers on the news of the extension. “By expanding Medicaid coverage, we are providing mothers with the continued care they need to survive and be around to raise their babies.” Dr. Jennifer Sullivan, Secretary of the Indiana Family and Social Services Administration, was e

Pilot Project

Yonder is an educational app that has had great success in reducing the anxieties many typically developing children have about going to the dentist by giving them an interactive introduction to what their dental visit will look like. It has some similarities to the way social stories are used to help children on the autistic spectrum, by providing a model for how this new experience will look, allowing children to explore the experience beforehand from the comfort of their own home.  They are seeking to add another tool for helping families with their regular dental care appointments and to hear directly from them on what is working well for them and what can be improved on. Please see the attached infographic for further details. Your feedback is appreciated immensely and they look forward to using it to help better meet your family's needs!  Yonder-Parent Instructions for Pilot by Family Voices Indiana on Scribd

Autism Spectrum Disorder and Complementary Health Approaches

From National Center for Complementary and Integrative Health.  This month's full issue can be found here Estimates of the prevalence of autism in the United States vary, but the most recent U.S. Government statistics estimate that about 1 in 54 children has been identified with autism spectrum disorder (ASD). There is no cure for ASD, but research shows that early diagnosis and interventions, such as during preschool or before, are more likely to have major positive effects on symptoms and later skills. Many parents choose complementary health approaches for their children with ASD to help  manage symptoms;  however, despite this use there is a paucity of high-quality research focused on complementary approaches for ASD. Of the ASD research that has been conducted, most has been in the pediatric population; very few trials of complementary health approaches have been conducted in adults with ASD.   The existing research indicates that  melatonin  may be beneficial for sleep disord

Learn More About a No-Cost Genetic Testing Program

  CURE Epilepsy would like to pass on some information that some families might find helpful. PTC Therapeutics and Invitae have partnered to provide PTC Pinpoint Neurotransmitter Disorders Program, a no-cost genetic testing, post-test genetic counseling, and family screening program for individuals of all ages who present with symptoms of neurotransmitter disorders, such as Aromatic L-amino Acid Decarboxylase (AADC) deficiency.  One of the most common symptoms of AADC deficiency is involuntary eye movements called oculogyric crisis. These are moments when a child’s eyes suddenly roll upward or to the side involuntarily. In addition, backward and side bending of the neck, extension of the tongue, and jaw spasms occur with oculogyric crisis. These crises can last anywhere from a few seconds to hours and can happen several times a day or several times a week. When this happens, it can look like your child is having a seizure.  Talk to your doctor about testing with PTC Pinpoint if your ch

Child Care Answers Website Survey

  Child Care Answers is committed to growing with you no matter where you are on your child care journey. In order to best serve you, we’re embarking on our own journey of redesigning our website. Our ability to meet you where you are is always top of mind, and we’ve seen firsthand how important our online presence is in order to make our work accessible to you—no matter what the world throws at us. In order to design a website that truly meets your needs,  we ask your participation in completing a  short survey . You’ll get a chance to tell us what’s most important to you, how you prefer to be engaged, and what specific tools or features you’d like to see on our website that will be most beneficial to you. After all, you are the expert of your unique situation—we want your voice and your expertise to inform everything we do. A few logistics: You can find the survey at CCAWebsiteSurvey . This survey should take less than 5 minutes of your time. As a thank you for y

Ticket to Work: Healthcare and the Path to Employment

  Ticket to Work: Healthcare and the Path to Employment Wednesday, April 28, 2021 3 – 4:30 p.m. ET Join us on April 28 for our next Work Incentive Seminar Event (WISE) webinar! During this month’s webinar, we’ll discuss the myths and facts about healthcare and work.  Learn about how employment affects Medicare and Medicaid benefits and how Ticket to Work Program resources can help you succeed on the path to financial independence. Get the facts on: How earnings from work affect your benefits, including Medicare or Medicaid How Social Security Work Incentives help you continue to receive medical benefits when you start working How a Benefits Counselor can help you on your journey to work Register now Online: By Phone:  1-866-968-7842  or  1- 866-833-2967 (TTY) You will receive a registration confirmation message with instructions on how to log in to the webinar. Please be sure to check your spam folder. WISE in American Sign Language (ASL) Our  ASL  Guide can he

HHS Renews COVID-19 Public Health Emergency Through July 19, 2021; Additional Renewals Are Expected

From Julian Polaris with manatt, original found here On April 15, 2021, the U.S. Department of Health & Human Services (HHS)  announced  that the Public Health Emergency (PHE) declaration for COVID‑19 will be renewed for another 90 days, beginning on April 21 (the date the PHE was previously scheduled to expire) and extending through July 19, 2021. This renewal is consistent with the Administration’s announcement that the PHE will likely continue through at least the end of calendar year 2021, as described below. However, the Administration retains the ability to terminate certain flexibilities on an ad hoc basis, even while leaving the PHE declaration in place. This update enumerates the key regulatory flexibilities and funding sources that are linked to the PHE, as well as key emergency measures with independent timelines that are not directly affected by the PHE renewal. Additional summaries and analyses on these topics are available through Manatt’s premium subscription service