Formerly Family Voices IN/About Special Kids. We provide answers and resources to families and professionals who are involved in the upbringing of children with complex medical conditions, mental health diagnoses and physical/intellectual disabilities.
COVID-19 Vaccines for School-Aged Children: What Parents and Families Should Know Thursday, December 9, 2021, 8:00 pm to 9:00 pm ET During this time of thanksgiving, we are so grateful that the large majority of schools are fully opened for in-school experiences. As yet another step in providing a safe in-school experience for students, children ages 5 to 11 are now eligible to receive vaccinations specifically formulated for young children. With that in mind, it is the goal of NAFSCE and the U.S. Department of Education to provide parents and practitioners with the latest research and information so parents are able to make the best decision they can around vaccinating their children. This webinar is a unique opportunity for parents and family engagement practitioners to ask questions, share their ideas and concerns, and to get their questions answered. Please join NAFSCE and the U.S. Department of Education on December 9 at 8:00pm, ET for an informational webinar follo
Infantile spasms (IS) are a rare, but serious type of seizure, occurring in one in 2,000 children, which can cause catastrophic, permanent damage to a child’s developing brain. Worldwide, it’s estimated a baby is diagnosed with infantile spasms every 12 minutes. We’re coming together for Infantile Spasms Awareness Week (Dec.1–7) to raise awareness for this serious medical emergency. Know the signs of infantile spasms. Seizures can include repetitive, but often subtle movements — including jerking of the mid-section, dropping of the head, raising of the arms or wide-eyed blinks. Advocating for your baby is key. Though infantile spasms may not look “dramatic,” they can have serious, life-long effects if not treated quickly. Do not hesitate to contact your doctor if you see possible symptoms of infantile spasms. Join the conversation with #ISAW2021 and visit www.infantilespasms.org to learn more.
The Indiana Immunization Coalition is now offering standing vaccine clinic hours every second Thursday of the month from 10:00am - 6:00pm at our office. Join us and get up to date on all your vaccinations for 2021! Address: 6919 E. 10th Street, Suite C2, Indianapolis, IN 46219. Notes: These open clinic hours are NOT limited to students - we welcome anyone in the community - all ages including newborns! There's no need to call ahead or schedule an appointment - you can walk in. Please bring your driver's license (or other state-issued identification) and health insurance card (including Medicaid card) with you. We accept all insurances (commercial, Medicaid, Medicare). If you do not have health insurance, your vaccinations are free. Shingrix is available for those with commercial insurance or Medicare. If you have Medicare, make sure to bring a credit card for any copayments. We do have the COVID-19 vaccines. Contact us if you have any questions. ***IMPORTANT: If you a
Date Tuesday, December 14 Time 9 to 10 a.m. Pacific Time Sponsor Institute for Patient- and Family-Centered Care (IPFCC) Details Based on a recent national study, speakers will discuss the prevalence and characteristics of Patient and Family Advisory Councils (PFACs) in children's hospitals, and how PFACs adapted during the pandemic. They will share guidance about strengthening partnerships with patients and families. The study was conducted by IPFCC in collaboration with Cincinnati Children’s Hospital Medical Center, with support from the Lucille Packard Foundation. Read more and register .
As a new phase of the COVID-19 vaccination campaign begins for children ages 5 to 11 years old, U.S. Surgeon General Dr. Vivek Murthy released a Community Toolkit for Addressing Health Misinformation - PDF to help Americans navigate the serious threat of health misinformation, especially online. Earlier this year, Dr. Murthy issued the first Surgeon General’s Advisory of this administration warning people about the urgent threat of health misinformation and calling for a whole-of-society approach to address it. Health Misinformation Toolkit English by Family Voices Indiana on Scribd
From The Lucile Packard Foundation for Children's Health Date : Tuesday, December 7 Time : 10 to 11 a.m. Pacific Time Register Now Over the past three years, researchers and family leaders from across the country have partnered to develop a national research agenda focused on improving the health care system for children and youth with special health care needs. Their first product, a newly published article titled Improving Health Care Transitions for Children and Youth with Special Health Care Needs , is one in an eight-part series to be published as a supplement to Academic Pediatrics . In this webinar, the article's authors will discuss the health care transition process for adolescents and young adults with special health care needs, describe their study's findings, and reflect on the implications of their recommendations. We suggest that attendees read the article prior to the webinar. Audience Q&A is highly encouraged. Speakers Megumi (Megie) Okumura, MD, MAS
Tuesday is Giving Tuesday! People can show their generosity in a variety of ways during #GivingTuesday —whether it’s helping a neighbor, advocating for an issue, sharing a skill, or giving to causes—everyone has something to give and every act of generosity counts. Y our contribution will make an impact, whether you donate $5 or $500. Every little bit helps. We hope if you decide to make a donation, you'll consider Family Voices Indiana/About Special Kids: https://www.facebook.com/donate/193239923005987/
The Hands & Voices Virtual Waiting Room is a resource for parents and caregivers, designed to help you learn more about the terms, resources, and available support for families with Deaf or Hard of Hearing Children. It looks just like a waiting room - head on over and click around, see what you can find! (Click the image below to open it in your web browser.)
These tools convert written text into automated speech (or speech into text), and can greatly improve reading comprehension, reading fluency, vocabulary, and writing skills in students with ADHD. How to use TTS and STT + top picks »
In this NIMH -funded study, researchers examined the association between distressing and persistent psychotic-like experiences in youth and important risk factors for psychopathology. The study findings highlight the need for early intervention for youth who report these experiences. Read more about this study