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Showing posts from February 27, 2022

Fact Sheet: Actions to Address the Needs of People with Disabilities and Older Adults in Response to and Recovery from COVID-19

The Biden  administration laid out  several new policy initiatives that seek to support the needs of people with disabilities and older adults during the COVID-19 pandemic. In this new  fact sheet , the White House announced the following actions: Providing schools with guidance and support to keep students with disabilities safe and learning in-person. Expanding the U.S. Department of Health and Human Services (HHS) Administration for Community Living’s  Disability Information and Access Line  to support persons with disabilities who face difficulty using or cannot use a self-test. Launching new COVID-19 testing guidance in American Sign Language and reviewing all existing COVID-19 guidance to confirm accessibility for persons with disabilities. Launching a new effort to develop at-home COVID-19 tests that are accessible to everyone with a disability through the  National Institutes of Health (NIH)’s RADx program . Incentivizing all at-home test manufacturers to prioritize accessibili

Pediatric Complex Care Seminar Session 7: Poly-pharmacy

  Date: Thursday, March 10, 2022 Time: 10:00 am to 11:00 am PT Collaborative Conversations with Families to Advance the Clinical Care of Children with Medical Complexities and Disabilities (C6) is a 10-part seminar series that builds on an international study, completed in 2020, designed to highlight key clinical research questions for the care of children with neurodisability and medical complexity. The series is led by complex care pediatricians Dr. Eyal Cohen and Dr. Catherine Diskin from the Hospital for Sick Children (SickKids) in Toronto, Canada, and Dr. Rishi Agrawal from Lurie Children's Hospital of Chicago, as well as Family Voices representatives Nora Wells, Cara Coleman, and Kate Robinson.  Each one-hour seminar will be hosted on Zoom and will include a panel of national experts, both clinical and caregiver. Seminars will begin with an overview of the topic and a conversation on shared decision making in pediatric complex care. The goal is to build a community of practic

On My Way Pre-K applications for the 2022-2023 school year now available

Indiana’s Office of Early Childhood and Out-of-School Learning is now accepting applications from families statewide who may be eligible for grants for their children to receive free, high-quality, pre-kindergarten education through the On My Way Pre-K program for the 2022-2023 school year. Information about the program and the link to apply can be found at . “We are always happy to enroll new students in On My Way Pre-K, but this year is especially exciting since we  recently released results of a Purdue University long-term study  showing that children who attend On My Way Pre-K are better prepared for school and that the benefits continue well into elementary school,” said Nicole Norvell, director of FSSA’s Office of Early Childhood and Out-of-School Learning. “We are eager to enroll a new group of young Hoosiers to benefit from the great early start this program provides for their learning.” For the 2022-2023 school year, a child is eligible for an On My Way Pre-K

Surprise Billing and Balance Billing – What You Need to Know

Original Found  Here The Indiana Department of Insurance wants you to be aware of the new protection from surprise medical bills. Indianapolis - New federal laws are in place to protect you from surprise bills in many cases. Here are the basics of the new protections. What is balance billing? Balance billing occurs when a health care provider bills a patient after the patient’s health insurance company has paid its portion. The balance bill is for the difference between the amount the provider charges and the price the insurance company sets, after the patient pays any co-pay, co-insurance, or deductible. Balance billing can occur when a consumer receives health care services from an out-of-network provider or an out-of-network facility. In-network providers agree with an insurance company to accept the insurance payment in full. In-network providers agree not to balance bill. Out-of-network providers do not have this agreement with the insurance company. Therefore, in the past they so

Kids & Teens with Extreme Anger & Irritability Research Study

  Are you walking on eggshells around your  IRRITABLE  CHILD? The National Institute of Mental Health is  currently enrolling participants who are: 8- to 17-years old angry, irritable, easily frustrated, or tend to have explosive temper outbursts in treatment with a pediatrician, psychiatrist, or therapist medically healthy, and not currently suicidal, psychotic, or hospitalized Following a 1-day outpatient visit to con fi rm eligibility, families may choose to participate in: outpatient treatment studies a non-treatment study These studies seek to find out whether these research treatments can be effective for children who are very irritable.   Children who enroll in our studies have irritability that significantly impacts their functioning at home, in school, and with other children. Eligible children may be offered a diagnostic assessment, a new approach to cognitive behavioral therapy, or non-treatment research options. The c hild can remain on current medications. Parent and child

Bureau of Quality Improvement Services Honoring Rights recording available

The Bureau of Quality Improvement Services is committed to supporting our provider network in working toward a true person-centered system which includes ensuring that individuals and those who support them honor individual rights and responsibilities. As part of that commitment, BQIS conducted a statewide training on Honoring Rights on January 13 and 20, 2022. We were particularly honored to partner with two individuals who have received waiver services to present this training. Participants learned about: Individual rights and responsibilities Home-and Community-Based Services Final Rule Supporting self-advocacy and self-determination A recording of the training is available here: If you have questions, need additional resources or support, or have suggestions for additional training, please contact us at .  

Participants Needed for a Genetics Q&A

Indiana Family to Family is looking for parents/legal guardians age 21 or older of children (0-21) with a genetic condition or who have completed or considered genetic testing for their child(ren) to participate in a Q&A discussion with Dr. Erin Conboy, Pediatrician and Geneticist at Riley Hospital for Children. This discussion will help us create resources to help families more easily understand and access genetic testing in the future. Participants will receive a stipend in the form of a $50 gift card that will be delivered electronically via email after completing an evaluation form once the Q&A is completed. If you are interested in participating, please register at Participation is limited.

New resource on LGBTQ+ identities

From Autistic Self Advocacy Network "Everyone should be able to learn about LGBTQ+ identities, especially their own. But information about these concepts isn’t always presented in an accessible way. Our new toolkit,   Definitions and Beyond ,   can help make these conversations accessible to all. This toolkit provides easy-to-understand explanations of societal discrimination and definitions of some words used to talk about LGBTQ+ identities and communities.   Definitions and Beyond   is a first step towards making these conversations accessible to everyone — more toolkits are in the works about feeling proud and supported as a member of the LGBTQ+ community. This guide will talk about things like: What being LGBTQ+ is The different ways people can identify and present themselves What different kinds of discrimination against LGBTQ+ people there are What stereotypes are and why they are bad How to find community and support if you feel bad about being different And more! The toolk

New SEP for People With Low Income

From Health Reform Beyond the Basics There is a new special enrollment period (SEP) now available on for people with low incomes. People who are eligible for this SEP can enroll in a plan or switch plans  at any time during the year , without having to experience a  qualifying life event .   This means that many more people can now enroll in coverage!   Eligibility for the new SEP is based on a person’s household income. Their annual income must be below  150% of the Federal Poverty Line  (FPL), which is $19,320 for a household of 1 and $39,750 for a household of 4.   Starting around  March 18th , people whose income is below 150% FPL will  automatically  get the SEP when they submit a application.   But there’s also a way for eligible people to get the SEP now by just submitting their application. They won’t get the SEP automatically, but will follow up with them by phone and email, likely within a week, to approve their enrollment. Eligibl

2022 Empowerment Scholarship

Scholarship applications are open  for the Hidden Truths Project Empowerment Scholarship for graduating seniors with epilepsy   interested in pursuing higher education in the arts, advocacy work, or healthcare .  Learn more  and apply by April 15.