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Showing posts from March 20, 2022

Governor signs Arc priority bills into law

The Indiana General Assembly sent 177 bills to the governor for him to either sign into law or veto. Governor Holcomb has gone through all the bills and signed 175 bills into law and vetoed two bills.    Below are bills important to The Arc of Indiana signed into law by the governor: House Enrolled Act 1002 - Prohibits FSSA from entering into risk based managed care until January 31, 2023.  House Enrolled Act 1073 - Allows for accessible vehicles to be covered under the state's motor vehicle protection act (lemon law). House Enrolled Act 1075 - Requires the 1102 Task Force to come up with recommendations for the Direct Support Professional (DSP) workforce, Community Integration and Habilitation (CIH) Waiver application process, and incident reporting requirements.  House Enrolled Act 1169 - Establishes the make up of the Division of Disability and Rehabilitative Services (DDRS) Advisory Council and the responsibilities of the council.  House Enrolled Act 1222 -   Eliminates the Bu

Steamboat Study

Neurocrine Biosciences is looking for children 4 to 12 years old with a clinical diagnosis of EECSWS to take part in the Steamboat Study, a 21-week clinical research study.  Learn more .

National Poison Prevention Week

This week is  National Poison Prevention Week  (NPPW)  March 20 – 26, 2022.  NPPW is an opportunity to highlight the dangers of poisonings for people of all ages and promote community involvement in poisoning prevention. HRSA funds 55 poison control centers across the nation and the Poison Help Line (1-800-222-1222).  Over 2,000,000 poisonings occur annually, with nearly 43% of all exposures involving children younger than age 5. Two-thirds of calls to the Poison Help line are successfully resolved over the phone, preventing unnecessary visits to the hospital and reducing medical costs.  Learn more at

Conversations with Families: Sleep Issues

When a family or child cannot sleep comfortably, their health can suffer. This eighth seminar in the pediatric complex care series will offer strategies that clinicians and families can use to manage sleep issues for children with medical complexity. The series, which always features both family and care provider viewpoints, is funded by our Foundation. Sleep Thursday, April 14 10 to 11 a.m. Pacific Time Read more and register .

Universal Studios Becomes More Sensory Friendly

Original from Disability Scoop by Shaun Heasley  | March 18, 2022 The Florida theme park scene is getting a new accommodation for people with disabilities. Universal Studios Florida said this week that it has opened a quiet room. The space is intended to “further assist our guests with cognitive disabilities,” according to Kristen Clark Smith, senior manager of public relations at Universal Orlando Resort. “We’re always seeking ways to provide the best possible experience for our guests, and we created the quiet room to better serve the needs of our diverse guests, including those with autism,” Smith said. “The new quiet room provides a quiet, low-stimulation space for guests who need a break from the noise and crowds of the theme park.” The room located at the front of the park includes rubber floor tiles, an activity panel wall, dimming lights and two hiding tunnels, Smith said. It is open to any guest who needs it. In addition, Smith noted that the park’s  accessibility information

Access to Coverage and Care in Medicaid and CHIP (Comments due 4/18)

The Centers for Medicare & Medicaid Services (CMS)  are seeking input  from stakeholders to inform the development of a comprehensive access strategy for Medicaid and the Children’s Health Insurance Program (CHIP). Your input will help CMS address barriers to enrollment and access to care. It also will help CMS ensure timely access to critical services, such as behavioral health care and home and community-based services. CMS is interested in hearing from a wide range of stakeholders, including people using Medicaid services. Comments can be submitted  online  until April 18. CMS seeks information on five key objectives:  Medicaid and CHIP reaches people who are eligible and who can benefit from such coverage Medicaid and CHIP beneficiaries experience consistent coverage. Whether care is delivered through fee-for-service or managed care, Medicaid and CHIP beneficiaries have access to timely, high-quality, and appropriate care in all payment systems, and this care will be aligned wi

In case you missed it: CDC’s Updated Developmental Milestones for Children

CDC has revised its  developmental milestones  to help parents, health care providers, and early childhood professionals identify children with developmental disabilities at younger ages and connect them earlier to the interventions that have been shown to improve outcomes. Prior to the update, the checklists indicated when 50% of children were expected to reach certain developmental milestones. That made identifying children with developmental disabilities early difficult because it didn’t provide clarity around when additional screening may be helpful. The checklists now indicate when 75% of children are expected to reach certain milestones, to make it easier to determine when a child might benefit from further evaluation. The new update also includes checklists for ages 15 and 30 months, so that a checklist is available for each recommended well-child visit.