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Showing posts from March 1, 2009

Parents who have children with heritable conditions invited

Parents who have children with heritable conditions are invited to participate in an all day stakeholder meeting in Indianapolis on April 29th on genetics and newborn screening. The stakeholder meeting, hosted by the Region 4 Genetics Collaborative, will include discussions on a variety of topics about how our region is working to improve the lives of children with heritable conditions and their families. Professionals such as genetic counselors, pediatricians, physicians and genetic specialists will also be attending. After the stakeholder meeting, parents are invited to participate in a facilitated discussion focusing on how having a child with a heritable condition effects your family. The experiences and thoughts of families are very important to help professionals understand family needs and issues. The Region 4 Genetics Collaborative will reimburse parents for travel costs to and from the summit and will be given $50 for their participation. Breakfast and lunch will be provided.

Indiana Vocational Rehabilitation Survey

FV Indiana is often contacted by families related to Vocational Rehabilitation, we urge you to take advantage of the following opportunity to share you experiences. Please share this information with other interested families. As a part of a multi year monitoring rotation the Rehabilitation Services Administration (RSA) is reviewing the Vocational Rehabilitation, Supported Employment and Independent Living Programs administered by the Indiana Division of Disability and Rehabilitative Services (DDRS). If you are a person with a disability or a family member of a person who has used Indiana's Vocational Rehabilitation services, the RSA would like you to share your experiences with the program, both positive and negative. Send your information as soon as possible to Mr. Terry Martin at the RSA: Terry Martin Technical Assistance Specialist U.S. Department of Education Rehabilitation Services Administration 550 12th Street, SW, Room 5012 Washington, DC 20202-2800 Phone: 202-245-727