Resources for You
Each month, Family
Voices Indiana provides the families we serve with a summary of the month’s hottest
items. If you missed us on Facebook in March, here is the latest!
Awareness:
Brain Injury
Awareness Month
Disability
Awareness Month
Hemophilia
Awareness Month
Trisomy Awareness
Month
March 5: Spread the
Word to End the Word Day
March 16-22:
Indiana Severe Weather Preparedness Week
March 21: World
Down Syndrome Day
March 25: Cerebral
Palsy Awareness Day
March 26: Purple
Day for Epilepsy
Family Voices:
Check out our Family Voices Staff Spotlights! This
month’s page featured specialist Ofelia Jimenez’s daughter, Nataly Garcia, and
specialist Cyndi Johnson’s daughter, Rebecca.
Facebook fans liked our many inspirational quotes.
Be sure to check out our page for a pick-me-up. Also, we
encourage you to share our page with friends using the share or invite
features!
"It's hardest when your child is very
young and you're still struggling to accept that he has special needs. So much
about the future is unknown, although you've heard every single grim risk of
his condition or disease. You wish doctors would just tell you what
your child will be like, but they can't say for sure. You want to have hope,
and you do, but sometimes worry and despair overpower it and you fear the
worst."Read about ways to always have hope here: http://www.lovethatmax.com/2011/08/9-ways-to-always-have-hope-for-your.html.
"While your list will most certainly be
different, creating a list of priorities and guidelines for your child’s
hospitalization will make a huge difference in the care you receive. You and
your child will be more comfortable, and it will be much easier to get
the entire team on the same page." Read the article here: http://articles.complexchild.com/march2014/00537.html.
Training and
Learning Opportunities:
Family Voices works to fulfill our mission of
empowering families by providing you with educational opportunities and
resources. Check our website frequently for learning
resources by visiting: http://www.fvindiana.org/trainingThis month, we shared the following on Facebook:
"Everybody's fighting some kind of
stereotype, and people with disabilities are no exception. The difference is
that barriers people with disabilities face begin with people's attitudes —
attitudes often rooted in misinformation and misunderstandings about what
it's like to live with a disability."Read the Myths and Facts about People
with Disabilities: http://www.easterseals.com/explore-resources/facts-about-disability/myths-facts.html.
For families of children with special needs
planning for emergencies, like tornadoes, becomes even more difficult. Using
this preparation and planning guide can help you be better prepared, no matter
what the emergency or disaster: http://www.chkd.org/documents/CareConnections/EmergencyPreparednessforFamilies.pdf.
"Parents realizing the importance of
early intervention and the research behind ABA, often have questions about
choosing specific ABA programs and providers." This article helps you
understand what to look for: http://bit.ly/1ix0aLh.
Newsworthy:
Families who prefer
information in Spanish and/or would like to connect with other Latino families
are invited to check out our Spanish Facebook page: https://www.facebook.com/VocesDeFamiliaDeIndiana.
We also host Pinterest
boards http://pinterest.com/fvindiana/; a YouTube Channel, http://bit.ly/1a28nTM; text messaging,
text
"FVIndiana" to 313131 for English or "FVIndianaEs" to
313131 for Spanish; a blog www.fvindiana.blogspot.com; and Twitter, https://twitter.com/FVIndiana. Each outlet serves a slightly different
purpose. We encourage you to try them all and use the one(s) that serve you
best!
We have two major national conferences coming
to Indiana this summer: The
Autism Society of America and National
Down Syndrome Congress. Conferences and trainings offer families a
way to learn and recharge, as well as connect with other families. Paying for the
conferences, however, may simply bring added stress. Our newest fact sheet
covers ways to seek help with the costs associated with
conferences for families with children and youth
with special healthcare needs: http://fvindiana.org/FactSheets/FS_Funding_Training_Conferences.pdf.
Collaboration:
Family Voices encourages you to use your voice to influence care,
public and private policy, and educate others. In that vein, we strive to share
with you opportunities to collaborate with others to improve the systems we
engage. Here are some upcoming opportunities:
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