Family Voices Update
from National Family Voices:
From the Office of the National Coordinator for Health Information Technology (US government)
National Council on Disability, 3/22/18
Article describing report: Federal Report Calls for Alternatives to Guardianship (Disability Scoop, 3/23/28)
From Family Voices: Tool Measures Level of Family Engagement, Offers Ideas for Enhancement
Though there is much agreement on the value of family involvement at the systems level of health care - where policies, programs, and services are created or changed - it is still rare for families to have more than a token amount of power and influence. A new issue brief from Family Voices provides a framework, featuring four domains and specific criteria, that organizations can use to measure and improve the level of family engagement in their work. Read the Issue Brief.
This new tool from the Kaiser Family Foundation allows the user to build a custom report compiling health-related data for a single state or multiple states. The user can choose from hundreds of State Health Facts indicators. This sample report looks at opioid overdose deaths, by age, as well as poverty rates in states hard-hit by the opioid epidemic. Learn more about Custom State Reports.
WORTH REPEATING:
Checklist for Caregivers to Assist in Communicating with Health Care Providers
The CDC's National Center for Chronic Disease Prevention and Health Promotion has developed an easy-to-follow checklist, in an infographic, to assist caregivers in communicating with their care recipients' health care providers. Webpage -- can be added to your website; PDF version (to print).
From the ARCH National Respite Network and Resource Center
This fact sheet includes resources for family caregivers of children and adults with intellectual and developmental disabilities (I/DD).
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