Recruiting 8-10 families for Newborn Screening Content Focus Group

Family Voices, in partnership with Expecting Health, is recruiting 8-12 families to participate in a content focus group for Expecting Health’s newborn screening (NBS) education training program, Navigate Newborn Screening.
 
Families will be asked to complete a brief pre-test via Survey Monkey. Once they have completed the Survey Monkey pre-test, they will next be asked to complete the Navigate Newborn Screening module. Finally, after completing the pre-test, participants will be asked to complete a post-test via Survey Monkey. After the completion of the post-test, families will participate in a call to discuss your experience with the training.
 
Recruitment Criteria
 
Eligible participants will be:
 
·       Expectant parents
·       New parents (within 2 years of birth)
·       Families affected by NBS condition
·       Someone with a NBS condition

We are have a particular interest in getting the feedback of families that are members of underserved communities, including:
 
·       Rural and frontier families
·       Racially and culturally diverse families
·       Families that are economically disadvantaged
·       Families that are Medicaid eligible based on household income
 
Compensation
Family leaders who participate will be compensated a total of $200 for their time. Family leaders will be asked to sign a compensation contract.
 
If you fit the criteria and are interested in participating, please complete this survey,
 
If you have any questions, please contact Allysa Ware at anware@familyvoices.org

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