Formerly Family Voices IN/About Special Kids. We provide answers and resources to families and professionals who are involved in the upbringing of children with complex medical conditions, mental health diagnoses and physical/intellectual disabilities.
The Division of Mental Health and Addiction and the Indiana Department of Education are launching an at-home mental wellness campaign called “Change the Frequency” to help Indiana families prioritize their mental health and overcome challenges posed by the COVID-19 pandemic, including the changing landscape of Indiana schools. Change the Frequency delivers free mental health resources to Hoosiers in the form of tangible at-home toolkits and online at www.Changethefrequency.today . Change the Frequency Checklist 1 by Family Voices Indiana on Scribd
The Arc of Indiana and Self-Advocates of Indiana are seeking input from families and self-advocates on the continued discussion of Medicaid Waiver redesign, including seeking input on lessons learned during COVID-19 changes. The links are below for those interested in participating. Medicaid Waiver Redesign Survey for Families Medicaid Waiver Redesign Survey for People with Disabilities
Join us on Tuesday, September 15 at 1:30pm for a virtual panel event. We will have representatives from Autism Learning Partners, Down Syndrome Indiana, Family Voices Indiana, and other agencies that serve the special needs population. We will be hearing about their organizations, the work that they do, and asking them your questions. This is a fantastic opportunity for parents, educators, and community members that would like to learn more about all of the resources that are available to individuals with a special need and their families in Central Indiana. Which questions would you like the panel to answer? Let us know! Just copy and paste the following address into an internet browser to fill out our survey: https://www.surveymonkey.com/ r/SpecialNeeds_Panel . https://us02web.zoom.us/ meeting/register/ tZwvcuyppjMjGNwIR4VpWOI8NqX_ IIqH59g3
From HANDS in Autism: Aides and support staff within various community settings (e.g., home, school, medical) play a critical role in supporting individuals with autism spectrum disorder and related disabilities. With our day-long VIRTUAL training, you can advance your caregiving and support skills across many instrumental areas (e.g., training adaptive and functional skills to a range of individuals, functioning levels and settings) while also networking with HANDS trainers and professionals in the field. While the training will be online, the knowledge and skills you gain will be applicable for both onsite and virtual applications. The next session is scheduled on August 28 . Register here .
CDC Expects 2020 Outbreak of Life-Threatening Acute Flaccid Myelitis--Doctors urged to quickly recognize symptoms and to hospitalize patients immediately (CDC Newsroom Release, 8/4/20) ( In Spanish ). Parents and doctors should suspect Acute Flaccid Myelitis (AFM) in patients with sudden limb weakness, especially during August through November. Recent respiratory illness or fever and the presence of neck or back pain or any neurological symptom should heighten their concern.
The Administration for Community Living (ACL) is seeking input from stakeholders on the new The Strategic Framework aims to support states efforts to: Address the holistic needs of older adults and people with disabilities through program coordination and integration with health care financing and delivery; and Support partnerships across health care and social service organizations to improve health care outcomes and lower costs by effectively addressing social determinants of health. Feedback can be submitted via email to ACLFramework@acl.hhs.gov .
With Medicaid and the Children’s Health Coverage (CHIP) health coverage, parents get the peace of mind that comes with knowing their children have access to essential medical care, such as preventive services or emergency care if a child is sick or gets injured. Children and teens up to age 19 in a family of four earning up to $50,000 a year or more may qualify for Medicaid and CHIP. Even if you have applied for free or low-cost health coverage from your state before and were denied, you and your children may now be eligible. Once they’re enrolled, they’ll have access to vital health services offered through these programs. Benefits include regular check-ups, shots, doctor and dentist visits, hospital care, mental health services, prescriptions and more. Getting a child health coverage gives parents one less thing to worry about. Protect your family and your finances. Enrollment is open year round. Visit InsureKidsNow.gov or call 1-877-KIDS-NOW (543-7669) to speak with an enrollment sp
From Covering Kids & Families of Indiana Newsletter White House & CMS Seek Permanent Telehealth Expansions Following an Executive Order from the White House, the Centers for Medicare and Medicaid Services (CMS) has issued a set of proposed rules meant to maintain the expansions to Telehealth Services put in place during the Public Health Emergency (PHE). In response to the COVID-19 pandemic, CMS significantly expanded payment for telehealth services and implemented other flexibilities so that Medicare beneficiaries could have access to care while avoiding exposure. This led to the broadest adoption of telehealth services seen to date. Before the PHE, it was reported that only 14,000 beneficiaries received a Medicare telehealth service per week. In contrast, over 10.1 million beneficiaries have received a Medicare telehealth service during the public health emergency from mid-March through early-July. CMS added 135 services such as emergency department visits, initial inpatient
Now more than ever, staying healthy is a priority. Besides washing your hands, social distancing, and wearing a cloth face covering, what else can you do to stay healthy? You can engage in preventive health care . That means keeping up with routine immunizations , health exams, and preventive screenings. TRICARE covers many preventive health care services at no out-of-pocket costs to you. Due to the coronavirus pandemic , many preventive service appointments or elective procedures were canceled or delayed. You may have put off making appointments due to concerns about possible exposure. “Now’s the time to pencil these services back into your calendar,” said Dr. James Black, medical director of the Clinical Support Division at the Defense Health Agency. “They can help identify and treat potential health issues before becoming serious. Depending on where you live, access to preventive care may still be limited, so check with your provider.” If you’re enrolled in a TRICARE Prime pl
(From the Food & Drug Administration, 7/31/20): FDA test results show certain hand sanitizers have ineffectively low levels of ethyl alcohol or isopropyl alcohol, which are active ingredients in hand sanitizer products. The agency urges consumers not to use these sub-potent products and has expanded its list (scroll down on page) to include sub-potent hand sanitizers, in addition to hand sanitizers that are or may be contaminated with methanol . [Note: On 8/5/20 at 4:57 pm, your Update author saw only two out of 115 problem products listed that were not made in Mexico -- TriCleanz Tritanium Labs Hand Sanitizer, and Leiper’s Fork Distillery Disinfectants, although I could have missed some.] For more information, see: Q&A for Consumers: Hand Sanitizers and COVID-19 Safely Using Hand Sanitizer
The official podcast of the American Academy of Pediatrics Pediatrics On Call has launched! Listen to hosts Drs Joanna Parga-Belinkie @JPBelinkieMD and David i Hill @davhill discuss hot topics with the leading experts in pediatric medicine. This Week on Pediatrics On Call "I personally have seen children who drowned in buckets and toilets and bathtubs and little plastic wading pools in the backyard.” Ben Hoffman, MD, FAAP “What was really surprising is the data on lack of confidence about effectiveness of influenza vaccine.” Allison Kempe, MD, MPH, FAAP Drowning Prevention and Vaccine Hesitancy Episode 2, July 21, 2020 Dr Ben Hoffman discusses drowning prevention; Dr Allison Kempe describes her research into vaccine hesitancy.