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Showing posts from November 29, 2020

Recruiting Adults with IDD to Talk about their Romantic Relationships


Family Telehealth Readiness Survey

Family Voices, Inc. (National) has created a survey about telehealth and family readiness. There are only seven questions and two of them are optional. They are not asking for any identifying information, other than state and zip code. We hope you'll take a moment to participate. English Version: r/FamilyReadiness   Spanish Version: r/FamilyReadiness-ES    

A Forum on Financial Planning for People With IDD

  Tuesday, December 15 at 2:00 p.m. ET REGISTER The ability to save is crucial in securing a life plan for people with intellectual and developmental disabilities (IDD) who often rely on public benefits like Supplemental Security Income (SSI), Medicaid, and housing and food assistance to pay for things that they need to live in the community. However, many public benefits have very strict limits on how much money you can have to qualify and keep the benefits. How do people know what public benefits they are eligible for? How can people save to buy the things they want and need when they have so little money to start with? What are special needs trusts and ABLE accounts, and when should people have one? While our panel of experts will not be able to provide advice on anyone’s individual situation, they will provide an overview of these important issues, provide helpful resources, and be available to answer your questions. Come learn how people with IDD can plan for their financial futur

STOP Infantile Spasms - it's IS Awareness Week

  From Child Neurology Foundation Did You Know? Worldwide, it’s estimated a baby is diagnosed with infantile spasms every 12 minutes. Infantile spasms (IS) are a rare, but serious type of seizure, occurring in 1 in 2,000 children, which can cause catastrophic, permanent damage to a child’s developing brain. The child neurology community is coming together for Infantile Spasms Awareness Week (Dec.1–7) to raise awareness for this serious medical emergency. With your help, we can more quickly diagnose Infantile Spasms. Visit  to learn more - including what to do if you suspect your child has IS - and join the conversation on social media with #ISAW2020

Please Help the National Federation of Families collect information on how virtual education is impacting mental health

  Action Alert: Important Family Survey How is School Affecting the Mental Health of Children and Families During COVID-19? Parents and Caregivers: We invite you to participate in our “How is School Affecting Children’s and Families’ Mental Health During COVID-19?” survey. Results of the survey will provide us with valuable information about the challenges families are currently experiencing and will inform our advocacy efforts at the national level. We hope you will share the survey with other parents and caregivers you know. Hearing from as many families as possible will only strengthen our ability to represent family voice. The survey will close Monday, December 7, 2020. Take the Survey

Reminder: Public Comment on Indiana’s Request for Flexibility from Federal Accountability Requirements for 2020-2021

IDOE is seeking public comment on its request to the US Department of Education to waive certain federal requirements pertaining to federal accountability for the 2020-2021 school year. This request is in response to the direct impact of COVID-19 on the ability to produce valid, reliable, and comparable accountability data and results for the 2020-2021 school year. Information on the request may be found on IDOE's  website . Public comments should be submitted   here . IDOE will accept public comment through December 4. Educators with questions regarding the public comment process are asked to send them  here .