Opp to Share: National Coordinating Center for Epilepsy: Wants to hear from young adults w/epilepsy
The National Coordinating Center for Epilepsy (Center) is seeking expertise from young adults with epilepsy as part of its national needs assessment regarding the health care of children and youth with epilepsy (CYE). The mission of the Center is to support those working to improve access to coordinated, comprehensive, quality care for CYE, particularly in medically underserved and/or rural areas across the life-course.
As part of its Innovations in Access to Care for Children and Youth with Epilepsy project, the Center is offering two opportunities for young adults to participate in a needs assessment project. You can participate in a focus group, complete an electronic survey, or do both. You must be 18 years of age or older and have been diagnosed with epilepsy to participate in this project.
Focus Groups: If you would like to provide in-depth feedback regarding your health care experience, please consider joining Center staff for a one-hour focus group. You will receive a $25 electronic Amazon gift card as compensation for your time.
Email epilepsy@aap.org with the subject line: “Interested in Epilepsy Focus Group – Young Adult Patient” to learn more about participating in a focus group. A staff member follow up with additional information, answer your questions, and schedule a time for you to participate.
Survey: If you would like to share your feedback via a brief, anonymous electronic survey, please follow this link: https://www.
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