Formerly Family Voices IN/About Special Kids. We provide answers and resources to families and professionals who are involved in the upbringing of children with complex medical conditions, mental health diagnoses and physical/intellectual disabilities.
From The Arc, Original Found Here By: Nicole Jorwic, Senior Director of Public Policy After a slight delay, both Senators and Representatives are back in their states and districts for August recess, but in fact, it goes until mid-September. That means it is a key time to engage, reach out, and share your stories about why Medicaid home and community-based services (HCBS) matter in the lives of people with disabilities, their families, direct care workers, and the care infrastructure. Every year, The Arc sends out t-shirts and signs to support advocates and encourage them to get out and ask their members of Congress to support the legislative priorities of people with disabilities. Those boxes were sent out to chapters this year, but with the ongoing pandemic, it is clear that in-person events may not be the best option. Moreover, we know that accessibility issues at town halls, even virtual ones, are a constant barrier to access. While The Arc staff continues the work to increase ac
Effective immediately, the Indiana Family and Social Services Administration (FSSA) Office of Medicaid Policy and Planning (OMPP) is updating reimbursement rates for the Division of Disability and Rehabilitative Services (DDRS) Community Integration and Habilitation (CIH) Waiver and Family Supports Waiver (FSW) services. The new rates are in alignment with House Bill 1001 and implement a 14% rate increase, specifically to increase the wages of direct support professionals for the CIH Waiver and FSW. These new rates apply retroactively to fee-for-service (FFS) claims with dates of service (DOS) on or after July 1, 2021. The full announcement can be found in the bulletin below. Br 202133 by Family Voices Indiana on Scribd
Original From INvision DDRS Newsletter, Aug 2021 Vocational Rehabilitation On July 26, the Americans with Disabilities Act turned 31! This important legislation has been critical in ensuring individuals with disabilities are not discriminated against in several areas, including employment. Below are some helpful tips to consider if you need an accommodation in the workplace. When to disclose or ask for an accommodation Generally, a person should disclose their disability when they need to request a reasonable accommodation for the workplace. Under the ADA, a person can request an accommodation at any time. This could be during the application process or while employed. There are situations when an applicant may need to disclose information about a disability during the early stage in the employment process. For example, if an accommodation is needed to complete an online application, participate in a job interview, or take an employment test, an applicant may need to disclose his
From Social Security Administration Kilolo Kijakazi, Acting Commissioner of Social Security, today announced 12 new Compassionate Allowances conditions: Charlevoix Saguenay Spastic Ataxia (ARSACS), Choroid Plexus Carcinoma, CIC-rearranged Sarcoma, Congenital Zika Syndrome, Desmoplastic Mesothelioma, Duchenne Muscular Dystrophy – Adult, Pericardial Mesothelioma, Refractory Hodgkin Lymphoma, Renpenning Syndrome, SCN8A Related Epilepsy with Encephalopathy, SYNGAP1-related NSID, and Taybi-Linder Syndrome. Compassionate Allowances is an initiative that quickly identifies severe medical conditions and diseases that meet Social Security’s standards for disability benefits. For more information, please visit https://www.ssa.gov/ news/press/releases/ .
From The National Alliance for Caregiving The Circle of Care Guidebook is intended to help Caregivers navigate through the varied experiences and challenges of rare and serious medical conditions, guided by the insights, achievements, and learnings of other caregivers and experts. The extensive array of topics covered in this Guidebook (nearly 100) underscores the many aspects of life and care that are impacted when caring for a child with a rare disease. Fortunately, there are a wide variety of helpful resources and organizations available to support and direct Caregivers, many of which are also highlighted in this document. Global Genes would like to thank the National Alliance for Caregiving and all the other Caregivers, organizations, and experts involved for calling attention to the unique needs of those caring for a child with a rare and serious illness, and for helping to develop this Guidebook as a resource. Working in partnership with patient-advocacy and consumer-facing part