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Showing posts from December 12, 2021

New Emergency Message from SSA Regarding Denied SSI Claims

From  Justice in Aging The Social Security Administration (SSA) published a new Emergency Message,  EM-20169 ,  Instructions for Reopening and Reevaluating SSI Claims Denied due to COVID-19 Disaster Assistance , on December 9, 2021. According to the EM, SSA is now reopening hundreds of thousands of applications for Supplemental Security Income (SSI) benefits that they previously denied from March 2020 to the present because those decisions may have been erroneous. While some cases will be automatically reviewed, other cases will need to be brought to the agency’s attention in order to correct errors related to a person’s receipt of disaster assistance. SSA is now reopening cases where they may have denied an SSI claim because the agency initially counted pandemic-related financial assistance. SSA later decided those payments should be excluded as disaster assistance for SSI purposes. For more information on identifying the various sources of pandemic-related disaster assistance and SSA

Executive Functioning – Strategies at Home

 From Autism Research Institute / Indiana Resource Center for Autism Learn practical strategies and activities to use at home to strengthen and support executive functioning skills. Presented by Amy Moore Gaffney, M.A., CCC-SLP ,   Indiana Resource Center for Autism  | | 1 p.m. Eastern Time (U.S.) 1/19/22 Register now

Share your experiences with mental health-related discrimination in higher education

  Have you experienced psychiatric disability-based discrimination or the denial of an accommodation in a postsecondary institution in the United States? Interested in informing national advocacy focus on psychiatric disability rights in higher education? Mental Health America ,  Project LETS , and the  Bazelon Center for Mental Health Law , in collaboration with Dr. Nev Jones (University of Pittsburgh), have developed a survey aimed at providing a more comprehensive understanding of student experiences of campus-based discrimination, mandated leaves of absence, and/or denial of academic, administrative and/or student-work accommodations in the US. Who is eligible?  Current or former students who are at least 18 years of age and have experienced any of the following on the basis of a psychiatric disability, including autism, within the past 10 years:  The denial or refusal of a psychiatric disability-based administrative, work or academic accommodation in a higher education institution

HIP Plan Selection

Wednesday, December 15th is the last day HIP members can switch health plans for the next calendar year.  If you are a HIP member and would like to switch health plans, you can call 877-GET-HIP-9.  All changes are effective January 1st.  If a member does not wish to change plans, no action is needed, and they will keep their current plan. HIP Plan Summary by Family Voices Indiana on Scribd


The  Build, Learn, Grow  scholarship for essential workers continues to help families afford child care. Don't forget that the expanded eligibility guidelines mean that  a family of four making up to $105,997 per year  may qualify for some form of scholarship. Apply today !

Family Voices IN and About Special Kids Have a New Name

Recently we announced that About Special Kids (ASK) and Family Voices Indiana were merging to strengthen our services, broaden our reach, and maximize our funding. We are excited to announce that our new name will be Indiana Family to Family . We also have a new address and phone number. Indiana Family to Family Support. Connect. Elevate. Indiana Family to Family  8435 Keystone Crossing Suite 190 Indianapolis, IN 46240 800.F2F.INFO (800.323.4636) Fax 317-251-7488 Look for information in the coming months on our new website design and web address. Please reach out to us if you have any questions. Sincerely, Holly Wheeler Interim Executive Director Indiana Family to Family

HHS Seeks Public Comments to Advance Equity and Reduce Disparities in Organ Transplantation, Improve Life-Saving Donations, and Dialysis Facility Quality of Care

The U.S. Department of Health and Human Services, through the Centers for Medicare & Medicaid Services (CMS) issued a Request for Information (RFI) to solicit stakeholder and public feedback that will be used to inform potential changes and future rulemaking to improve the organ transplantation system and seek to enhance the quality of life of those living with organ failure. This is part of the Biden-Harris Administration’s ongoing efforts to improve the health outcomes of the more than 106,000 people who are waiting to receive a life-saving or life-enhancing organ transplant. CMS is focused on identifying potential system-wide improvements that would increase organ donations, improve transplants, enhance the quality of care in dialysis facilities, increase access to dialysis services, and advance equity in organ donation and transplantation.  This RFI seeks feedback from those on organ transplant waitlists, transplant recipients, their families, living donors and those who sign u

Research Spotlight: A Clinical Trial for Epileptic Encephalopathy with Continuous Spike-and-Wave during Sleep

Neurocrine Biosciences is looking for children 4 to 12 years old with a clinical diagnosis of EECSWS to take part in the Steamboat Study, a 21-week clinical research study. The primary purpose of this clinical research study is to evaluate the safety and effectiveness of an investigational medication for EECSWS. To learn more, visit .