Feedback Wanted - Youth or Young Adults Between the Ages of 12 - 26 with I/DD
The LifeCourse Nexus is working with national partners to create Health Care Transition resources to support youth and young adults with Intellectual and Developmental Disabilities (I/DD). The goal is support youth and young adults with I/DD to learn about leading their own health care as they move into adulthood. The resources include Health Care Transition Kits that each explore a topic. This work is part of the Center for Transition to Adult Health Care for Youth with Disabilities, led by Family Voices.
Participation Involves:
Topics Include:
For questions, contact Marie Clark at marieclark@umkc.edu
Participation Involves:
- Attending 8 virtual meetings (approximately 90 minutes each) between July 2024 and April 2025.
- Reviewing a kit in between meetings.
- Providing feedback on each kit during meetings.
- A $100 stipend for each kit reviewed, for up to 6 kits.
Topics Include:
- Understanding Health Care Transition
- Knowing About Your Health Care
- Leading Day to Day Health Care Routines
- Leading Your Health Care Visits and Interactions
- Understanding Your Legal Rights in Health Care Settings Planning for Moving to Adult Health Care
For questions, contact Marie Clark at marieclark@umkc.edu
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