From Covering Kids & Families of Indiana
A child or adolescent with medical complexity and their families often face challenges where self-advocacy becomes important. Young people may not be able to advocate for themselves if they do not understand their illness or know how to express their wants and needs. While it can be difficult to explain a diagnosis to a child, it is essential to do so in developmentally and age-appropriate ways in order for the child to process the information and begin to develop coping skills.
This toolkit is designed to help parents, caregivers, children, adolescents and teens on the advocacy journey.
Section One: Children’s Stages of Development and Effects of Illness
Section Two: Advocacy Guide for Caregivers
Section Three: Self-Advocacy Guide for Adolescent Patients
Section Four: How to Build an Advocacy Team
Section Five: Additional Resources for Information
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