Research Opportunity for Parents
This is an excellent opportunity for a parent to be a partner on a research project. The Principle Investigator is looking for two very specific parents to partner on the study and we are hoping you can help us find them.
1. A parent whose child has experienced migraines AND has used the Emergency Department as a result of those migraines.
2. A parent of a child who had COVID and as a result experienced multisystem inflammatory syndrome (MIS-C).
This is a new research project that is seeking family partners interested in helping to develop an interview guide and probing questions, as well as help determine the most important outcomes to patients and families when asking the question “How well do children with MIS-C and migraines do when cared for using an existing clinical protocol vs. not using a protocol?” In other words, there is a “pathway” that specifies how to treat these problems in a certain order, but sometimes clinicians don’t follow it but rather develop their own plan. This study will look at if there is a difference in the outcomes, and also how parents feel about the “pathway” vs. no path.
As an active member of the research team, parent partners will attend meetings twice monthly to develop the interview questions and develop outcomes. Family partners will also assist in the data analysis and manuscript writing on this project. Additionally, you will be expected to complete a one time online training on partnering in research that will take approximately 3-4 hours.
Time expected is 2-3 hours per month and a stipend of $25/hour will be paid for your time. Those interested can reach out to Charlene.Shelton@CUANSCHUTZ.
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