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Showing posts from May 24, 2020

Recruiting 8-10 families for Newborn Screening Content Focus Group

Family Voices, in partnership with Expecting Health, is recruiting 8-12 families to participate in a content focus group for Expecting Health’s newborn screening (NBS) education training program, Navigate Newborn Screening.   Families will be asked to complete a brief pre-test via Survey Monkey. Once they have completed the Survey Monkey pre-test, they will next be asked to complete the Navigate Newborn Screening module. Finally, after completing the pre-test, participants will be asked to complete a post-test via Survey Monkey. After the completion of the post-test, families will participate in a call to discuss your experience with the training.   Recruitment Criteria   Eligible participants will be:   ·        Expectant parents ·        New parents (within 2 years of birth) ·        Families affected by NBS condition ·        Someone with a NBS condition We are have a particular interest in getting the feedback of families that are

Waiver redesign update

From DDRS Updates Beginning Monday, June 1, 2020, the Division of Disability and Rehabilitative Services and the Bureau of Developmental Disabilities Services will provide stakeholders with a final opportunity to offer comment and feedback on the initial concept paper. As part of this opportunity, we will: Host two virtual stakeholder forums, details below, to briefly review highlights from the initial concept paper and provide time for share ideas, provide recommendations and ask questions. June 9, 2020, from 6 to 8 p.m. EDT via WebEx and may be accessed by clicking here . June 19, 2020, from 10 a.m. to noon EDT via WebEx and may be accessed by clicking here . Focus our June 12, 2020, Facebook Live on the concept paper, focusing on key concepts and answering your questions. Continue to collect feedback via the electronic survey or by emailing DDRSwaivernoticecomment@fssa. . While BDDS is interested in gathering general feedback on the initial concept paper,

Have a #RealConvo during Mental Health Awareness Month

There are so many ways to start the conversation about mental health with a friend! Especially now, reaching out can make a big difference. For tips on how to start talking, check out our video tips on how to have a #RealConvo about mental health and share the graphics below.  From American Foundation for Suicide Prevention

IHCP temporarily covers COVID-19 related services under family planning programs

Effective March 18, 2020, and to accommodate all Indiana Health Coverage Programs (IHCP) members who require testing for the coronavirus disease 2019 (COVID-19), the IHCP is temporarily adding services to the limited benefits under the Family Planning Eligibility and Presumptive Eligibility (PE) Family Planning programs, through the duration of the public health emergency.  More information can be found in the document below. IHCP COVID-19 by Family Voices Indiana on Scribd

2020 Indiana Autism Spectrum Disorder Needs Assessment

"Hands in Autism needs your input! Share your voice and helps us ensure the # NeedsAssessment reflects your story – your challenges, barriers, successes and victories! Information collected from the # AutismNeedsAssessment informs next steps in efforts to improve the # QualityofLife and # access to resources for families, caregivers, and individuals with # AutismSpectrumDisorder ( # ASD ). Take time to complete the survey yourself. Share the survey with your family, providers, and community. The survey is available in English and Spanish with more information and the survey available at . Interested in learning more and seeing prior annual reports, accessible through Indiana Bureau of Developmental Disabilities Services, # HANDSinAutism # ASDawareness # IIACC " 2020-NeedsAssessmentFlyer_052520 by Family Voices Indiana on Scribd

Free Parent Zooms Presented By IIDC

Below is a list of free parent zooms we will be presenting this summer.  Presenters include IRCA staff and some autism leaders.  There is also a session presented by members of the ABA work group for parents of newly diagnosed individuals. Free Parent Zoom Meetings Summer 2020 ACC by Family Voices Indiana on Scribd

Upcoming changes to the First Steps program

From DDRS In response to feedback from stakeholders, First Steps is launching a new technology solution designed specifically to support early intervention processes across the state. The web-based system, named EI-Hub, will be available in 2021! First Steps understands that a new system will mean change for our stakeholders. Recognizing the impact of these changes, we are committed to working with stakeholders to make sure the transition to EI-Hub is successful for everyone. The initial step in that process is understanding your readiness for the change. We ask that you please take a few minutes to complete a short survey on you and your organization’s readiness for the new EI-Hub. Click the link below to begin: Click here for the survey.  Your feedback is essential to the success of this project and will help us provide what you need to prepare for the coming changes. If you have any trouble accessing the survey, please contact PCG at

FDA Announces Temporary Flexibility Policy Regarding Certain Labeling Requirements for Foods for Humans During COVID-19 Pandemic

The U.S. Food and Drug Administration is issuing a guidance document to provide additional temporary flexibility in food labeling requirements to manufacturers and vending machine operators. The goal is to provide regulatory flexibility, where appropriate, to help minimize the impact of supply chain disruptions on product availability associated with the current COVID-19 pandemic. Entitled “ Temporary Policy Regarding Certain Food Labeling Requirements During the COVID-19 Public Health Emergency: Minor Formulation Changes and Vending Machines ,” this guidance is one of several the FDA has issued to provide temporary flexibility to the food industry to help support the food supply chain and meet consumer demand during the pandemic. First, the FDA is providing flexibility for manufacturers to make minor formulation changes in certain circumstances without making conforming label changes, such as making a change to product ingredients, without updating the ingredient list on th