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Showing posts from March 21, 2021

CARE_PATH for Kids: A Family-Centered Approach to Shared Plans of Care for Children with Special Health Care Needs

From the Lucille Packard Foundation for Children's Health   Date : Thursday, April 15  Time : 11 a.m. to 12 p.m. Pacific Time Register Now Shared care-planning for children with special health care needs (CSHCN) must start with a comprehensive view of the child and family and be anchored to their unique strengths, needs, context, and aspirations. The Child and Adolescent Health Measurement Initiative designed and piloted the  CARE_PATH for Kids , a novel three-step, family-centered approach to the process of creating  Shared Plans of Care (SPoC)  for CSHCN that complements existing models in the field. Learn how the CARE_PATH for Kids: Helps families reflect on and share with care teams a summary of strengths, whole life context, unique needs and priorities, and their goals and vision for their child and family’s well-being. Facilitates a close relational meeting between the family and care team to create a 'Dashboard' summary that serves as the foundation of a SPoC and is

HANDS in Autism: Early Childhood Development Training

HANDS in Autism® is looking for  children with interest in participating as part of their upcoming 3-Day Early Childhood Development Trainings for early childhood professionals. They have conducted this training for the past 7 years in both in-person and now virtual formats. Participants in this training serve in a range of professional roles within school and community-based early childhood, preschool and early elementary settings with students with ASD and related eligibilities or needs. They attend the training to be able to observe students, as well as interact with the students to practice skills with feedback from HANDS trainers during the 3-day training event. As such, they are seeking individuals with autism spectrum disorder (ASD) and/or individuals with social, communication, behavior, or neurodevelopmental disorders who are between the ages of 2 and 6 years to participate. In 2021, opportunities are available for children or student participants during the following weeks: ·

Disabled Recipients of Stimulus Aid Are Urged to Save in ABLE Accounts

Original from ABLEnow   Special savings accounts for people with disabilities are getting fresh attention, as a way to safely put aside all or part of federal stimulus payments. ABLE accounts, as they are known, were introduced in 2016 as a way to give people with disabilities greater financial security and more independence. Read the entire article from February 2021 in  The New York Times .

Participate in Research: Seeking families who have boy and girl siblings diagnosed with ASD

Researchers at Massachusetts General Hospital, Harvard Medical School, and the Autism Research Institute are seeking families to participate in this study who have both boy and girl siblings with autism. These families will be mailed stool kits with instructions and will be asked to collect samples. A brief medical history will be taken. Please contact Harland Winter, M.D., by phone 617-724-2004, or   email , for additional information, and enrollment details. CLICK HERE to email the study administrator for more information

2021 Special Enrollment Period Access Extended to August 15 on for Marketplace Coverage

  Yesterday, President Biden announced that the Centers for Medicare & Medicaid Services (CMS) is extending access to the Special Enrollment Period (SEP) until August 15 – giving consumers additional time to take advantage of new savings through the American Rescue Plan. This action provides new and current enrollees an additional three months to enroll or re-evaluate their coverage needs with increased tax credits available to reduce premiums.   “Every American deserves access to quality, affordable health care – especially as we fight back against the COVID-19 pandemic,” said HHS Secretary Xavier Becerra. “Through this Special Enrollment Period, the Biden Administration is giving the American people the chance they need to find an affordable health care plan that works for them. The American Rescue Plan will bring costs down for millions of Americans, and I encourage consumers to visit and sign up for a plan before August 15.”   To read the HHS press release, visit

Save the Date: National Caregiver Summit

  Paid and unpaid caregivers have been the backbone of the health care system for CSHCN for many years, yet their work is not adequately recognized or compensated. A National Caregiver Summit on May 25 will offer the opportunity for caregivers, advocates, and thought leaders to work with others to identify and support solutions to issues that affect all caregivers – family members, home health workers, community health workers, etc. The summit is sponsored by Health Leads and the Stanford Clinical Excellence Research Center, with support from our Foundation. To receive updates and register for this event,  join the mailing list .

Family Voices IN Telehealth Training-Stipend Now Available to first 20 Registrants!

Family Voices Indiana is Partnering with Project Sunshine

Family Voices Indiana  is partnering with Project Sunshine, an international non-profit that brings free, interactive play and activities to families with children facing medical challenges. In response to the pandemic, Project Sunshine introduced a new program: TelePlay which is live, interactive activities and games led by highly trained volunteers. Families can choose from a variety of programs ranging from trivia, to Scattergories, to music, to art for children ages 5-9, 10-14 and 15-18. All programs are designed to protect children’s privacy and bring a little joy to the day – caregivers and siblings are welcome. To join a game, click this  link  and you will be taken to a calendar of events. You can find the description of each game by clicking on the game. Below is a teleplay demonstration.