Skip to main content


Showing posts from April 10, 2022

How to Advocate for and Talk About Home and Community-Based Services

  From  Justice in Aging When: Tuesday, April 19, 2022, 11:00 a.m. PT / 2:00 p.m. ET The vast majority of older adults and people with disabilities want to live at home and receive the help they need there. But most people who receive Medicaid can’t access the support they need because Home and Community-Based Services (HCBS) are woefully underfunded across the country. At the same time, because funding for institutions is required through the Medicaid program, millions of people are institutionalized who would do much better at home.  Advocates are working together to secure investments to increase the availability of Medicaid HCBS and ensure that the workers who provide help to people in their homes, who are mostly women of color, are paid fairly, receive proper training, and are treated with respect. Recent messaging research has revealed best practices for how to talk about HCBS persuasively, and can be used to advocate for increased funding. Individuals who rely on Medicaid HCBS c

Empowering individuals

"The Bureau of Quality Improvement Services is committed to supporting our provider network in working toward a true person-centered system which includes ensuring providers are supporting individuals to be as independent as possible. This is a basic tenet of home-and community-based services. As part of that commitment, BQIS is hosting a web-based training opportunity focused on empowering individuals. The presentation will explore the difference between support versus supervision, remedying over support, providing active support and person-centered planning. This opportunity is being provided at no cost to participants and is  mandatory  for all current Bureau of Developmental Disabilities Services home-and community-based services providers. This means if your organization is a current BDDS service provider of  any  home-and community-based service, it is  required  that an executive level staff member of your organization attend this training. Sign-up, participation and comple

An Autism GALA: Success for All and How We Get There

Join virtual speaker, Dr. Temple Grandin, Professor of Animal Science at Colorado State University and autism advocate, and in-person speaker, Sam Mitchell, Executive Director of Autism Rocks and Rolls Corporation and autism advocate, for a night showcasing the success of those on the spectrum.  Learn more at

UPDATE: SSA and Representative Payees (RP)

The ABLE NRC regularly communicates with the Social Security Administration (SSA) and recently requested clarification on representative payees and ABLE accounts. The Supplemental Security Income (SSI) and Social Security Disability Insurance (SSDI) representative payee policy on benefits saved in the ABLE account is the same as the SSA policy on saving benefits in other types of financial accounts such as checking or saving accounts. However, an ABLE account offers the opportunity for tax-free growth along with up to $100,000 of ABLE account savings not counted towards eligibility or continued eligibility to SSI benefits. No amount of savings, up to the state limit which ranges from $235,000 to $550,000, affects Medicaid or other means-tested benefits.  Learn more.

How Do We Live with COVID Now?

From NIHCM Foundation April Newsletter More on this Data Visualization Q&A: How Do We Live with COVID Now? As COVID restrictions become more relaxed, and  more people go into offices  and states drop mask mandates, questions remain about how careful people need to be, particularly those who are immunocompromised or have unvaccinated children. Here’s the latest news on common concerns: Q: Who should get a second booster? A:  The Food and Drug Administration (FDA) has authorized a  second booster dose  of the COVID vaccine for all adults 50 and older. The  Centers for Disease Control and Prevention (CDC)  reports that the additional booster is especially important for people 65 and over and those 50 and older with underlying medical conditions. They also recommend that all adults who received a primary and booster dose of Johnson & Johnson’s COVID vaccine get a second booster of an mRNA vaccine. Q: What is the plan for a future with COVID? A:  A new 136-page report  written by do

Important Update on the Family Glitch

From  Beyond the Basics Since 2013, the “family glitch” has prevented millions of otherwise eligible people from getting financial help to enroll in a marketplace plan. This week, the Administration issued a   proposed rule   that would fix the family glitch   What is the family glitch? Under the ACA, if a person is offered insurance through their employer that is both  affordable and meets minimum value standards , they are not eligible for a premium tax credit (PTC). Employer-sponsored coverage is considered affordable the employee self-only plan costs less than a certain percentage of the person’s household income (the percentage is updated annually; in  2022 it is 9.61% ). Due to the way affordability of employer-sponsored insurance is defined by the IRS, if the person’s employer offers family coverage, then the person’s family is also not eligible for a PTC, even if the family coverage costs more than 9.61% of their household income. This is known as the family glitch.   What does

New ABLEnow Enrollment Option

If an eligible individual cannot open their ABLEnow account, or would prefer to have assistance, an Authorized Representative can open and manage the account for them. Now, a representative payee can serve as an Authorized Representative for an eligible individual. More information  HERE .

Ableism and Violence, a plain language guide

Written By  • Zoe Gross, Autistic Self Advocacy Network  • Max Barrows and Karen Topper, Green Mountain SelfAdvocates  • Roberta Sick, University of Arkansas  • Sandra Harrell and Jennifer Decker, Vera Institute of Justice "This booklet is about ableism and violence. It is written in plain language. We wrote it for people with disabilities to understand ableism. Ableism may be a new word to many people. We often hear people use academic words to describe ableism. It is important for people with disabilities to be able to explain ableism." Ableism and Violence Guide 9.964 by Indiana Family to Family on Scribd